CAPABILITY

Second Workshop May 21 - 23, Oxford, UK

Thursday May 22
9:30 am Housekeeping
Alastair Kent, President of the European Alliance of Genetic Support Groups, Genetic Interest Group (GIG), London, United Kingdom
  Welcome and Introductory Remarks
Irmgard Nippert, CAPABILITY Co-ordinator, Women´s Health Research, Department of Human Genetics, Westfälische Wilhelms-Universität (WWU), Münster, Germany
Document
10:00 am Needs Assessment Report / Subcommittee 2
Chris Howson, Global Programs, March of Dimes, White Plains, New York, United States of America on behalf of Arnold Christianson, Medical Genetic Services School of Pathology, Faculty of Health Sciences, University of Witwatersrand (WITS), South Africa
(Document not available)
 

Clinical Utility Report / Subcommittee 1
Joerg Schmidtke, Institute of Human Genetics, Medizinische Hochschule Hannover (MHH), Germany
Document
  Discussion: How to integrate recommended approaches into the demonstration project
  Testing Challenges: The Clinical Use of Genetic and Molecular Biomarkers - A Public Health Perspective
Ron Zimmern, PHG Foundation, Cambridge, United Kingdom
Document
1:30 pm Partners' Reports (Demonstration Projects)
  Private-Public Partnerships in Clinical Genetic Services
Joerg Schmidtke, Institute of Human Genetics, Medizinische Hochschule Hannover (MHH), Germany
Document
  CAPABILITY Argentina - Pilot project: Chaco “Las Breñas”
Cristina Barreiro, Medical Genetic Service Hospital de Pediatría S.A.M.I.C."Prof. Dr. Juan P. Garrahan" (SAMIC), Buenos Aires, Argentina
Document
  CAPABILITY Argentina - Video Resistencia - Chaco, March 2008
Video .wmv
4:00 pm Presentation by EuroGentest Units:
  Information for Patients: Quality and Communication (Unit 6)
Celine Lewis, Genetic Interest Group, London, United Kingdom
Document
  Update from EuroGentest (Unit 1)
Rosalind Hastings, UK NEQAS for Clinical Cytogenetics, Women's Centre, John Radcliffe Hospital Oxford, United Kingdom
Document
Friday May 23
9:00 am

Health Care Needs Assessment and Prioritisation
Andrew Stevens, Department of Public Health and Epidemiology, Birmingham University, Birmingham, United Kingdom
Document
 

New Networking Projects and Partnerships

Genetic Testing in Emerging Economies: An international survey in collaboration with the Institute for Prospective Technological Studies (IPTS)

Genetic Service Development in China
Nanbert Zhong, Director, Chairman Peking University Center of Medical Genetics Beijing, China.
New York State Office of Mental Retardation and Developmental Disabilities, Institute for Basic Research in Developmental Disabilities. Staten Island, New York, United States of America
(Document not available)

Networking in Eastern Asia
Carmencita Padilla; National Institutes of Health; University of the Philippines; Manila; Philippines.
Document

Genetics and Public Health Network in Latin America Recent Developments
Victor B. Penchaszadeh, Program on Genetics in Public Health and Human Rights, Pan American Health Organization (PAHO), Buenos Aires, Argentina
Document

Global Partnership for Perinatal Health Networks (GPPHN)
Christopher Howson, Global Programs, March of Dimes, White Plains, New York,
United States of America
(Document not available)
1.30 pm Steering Committee Meeting
3:00 pm Close of Meeting