HIGHLIGHTS
  News
CAPABILITY continues its networking activities in 2010 with the GenTEE project Joint Meeting of the Capability - Network and the Instituete for Health and Consumer Protection (IHCP) on Genetic Testing in Emerging Economies (GenTEE)

Location: Ispra, August 30 to September 02, 2010




Available now:

The CAPABILITY Report "Model Approaches for Capacity Building for the Translation of Genetic Knowledge into Practice and Prevention"   
click here


Presentations from the CAPABILITY workshop III in Trolleholm
available now
click here







  

 

CAPABILITY

CAPABILITY is a 3-year model project developed jointly by units 3 (Clinical Genetics, Community Genetics and Public Health) and 6 (Education) of the Network of Excellence: Genetic Testing in Europe Network for test development, harmonization, validation and standardization of services (EuroGentest) and by leading experts from: Argentina, Egypt and South Africa, the latter being currently engaged in major development projects to integrate genetic services in primary care and prevention in their countries.

CAPABILITY will:

  • develop an analytic framework for evidence-based genetic test evaluation including the domains: efficacy (evidence of utility in controlled settings) and effectiveness (evidence of utility in real settings), identify priorities for capacity building by a systematic needs assessment survey and
  • validate the project's approach by means of a demonstration project.

CAPABILITY's overall objectives are to contribute to the efforts to establish and sustain a worldwide harmonisation process for quality standards for the integration of genetic test/genomic knowledge applications into practice and prevention and to serve as a model project for successful, sustainable collaboration between EU research centres and centres from developing countries.

The following challenges are common to both EU and middle income countries:

  1. The need to develop an evidence-based evaluation process for genetic tests or other applications of genomic knowledge in transition from research into practice.
  2. The need for capacity building to enable health care systems to integrate adequately genetic/genomic applications with proven clinical utility into practice and prevention.
  3. The need to establish an evidence-based implementation process for genetic/genomic knowledge from research into routine practice, including the review of testing practices, to ensure quality standards of services
CAPABILITY is a first step to address these challenges.


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