Capability and GenTEE Project Homepage

HIGHLIGHTS		News
CAPABILITY has continued its networking activities in 2012 with the GenTEE project The 4th GenTEE meeting took place in Muscat, Oman from March 10th to 12th, 2012. Location: Crowne Plaza, Muscat Presentations Programme Links: 6th International Conference on Birth Defects an Disabilites in the Developing world 15th Biennial Congress of the SASoHG		GenTEE will be presented at 6th International Conference on Birth Defects and Disabilities in the Developing World, November 10 - 13, Shangri-La mactan, Cebu, Phillipines Programme: ICBD2013 The GenTEE project was presented at the 15th Biennial Congress of the South African Society of Human Genetics, October 6 - 9, Johannesburg
The 3rd GenTEE meeting took place in Beijing, October 28th to 31st, 2011 and was organized in cooperation with Prof. Nanbert Zhong, Center of Medical Genetics, Peking University Health Science Center, Beijing, P. R. China Presentations The 2nd GenTEE meeting took place at the Institute for Health and Consumer Protection (IHCP) in Ispra from March 23rd to 25th, 2011

GenTEE (Genetic Testing in Emerging Economies) Background The emerging economies of China, East Asia, India, Latin America, the Middle East and South Africa all have started to put resources into the development of national biomedical genetic research infrastructures and are developing policies on how to translate genetic/genomic knowledge into their (public) health care systems. Due to thje epidemiological transition these countries are facing an increasing portion of morbidity and mortality due to congenital and genetic conditions a rising need for genetic services and the development of quality standards for the provision of genetic testing services. Like in high-income countries, albeit often with fewer available resources, these countries need to develop the necessary infrastructure, tools, resources, guidelines and procedures leading to the establishment of quality genetic services and competence in genetic testing GenTEE is an international network that closely links leading academic institutions from Argentinia, Brazil, China, Egypt, India, Oman, Philippines and South Africa with European efforts funded by the European FP7 programme to develop, harmonize, validate and standardize genetic testing services in the 27 EU Member States (EuroGentest2: http://www.eurogentest.org/ )The GenTEE network - a successor of the CAPABILITY network - is supported by the European Commission's Research Centre "Institute for Health and Consumer Protection" (IHCP: http://ihcp.jrc.ec.europa.eu) The main objectives of GenTEE are: to document and compare current practices and the state of genetics service provision in the participating countires to fill current knowledge gaps to promote an internationally shared set of basic quality standards for genetic testing and the provision of appropriate genetic services that will facilitate future joint research and the exchange and transfer of knowledge and technology To date, GenTEE has completed a pilot survey that maps the current state of genetic services in the participating countries. The outcome will be presented at an international workshop in Beijing, P. R. China, from October 28th - 31st, 2011. (GenTEE will be funded until 2013)

Available now: Programme of the GenTEE Meeting held at Ispra, Italy from August 30th to September 2nd, 2010 click here The CAPABILITY Report "Model Approaches for Capacity Building for the Translation of Genetic Knowledge into Practice and Prevention" click here Presentations from the CAPABILITY workshop III held in Trolleholm, November 30th to December 3rd, 2009 available now click here The CAPABILITY Presentation held at the 4th International Conference on Birth Defects and Disabilities in the Developing World, October 4th to 7th, 2009 , New Delhi, India click here
CAPABILITY CAPABILITY is a 3-year model project developed jointly by units 3 (Clinical Genetics, Community Genetics and Public Health) and 6 (Education) of the Network of Excellence: Genetic Testing in Europe Network for test development, harmonization, validation and standardization of services (EuroGentest) and by leading experts from: Argentina, Egypt and South Africa, the latter being currently engaged in major development projects to integrate genetic services in primary care and prevention in their countries. CAPABILITY will: develop an analytic framework for evidence-based genetic test evaluation including the domains: efficacy (evidence of utility in controlled settings) and effectiveness (evidence of utility in real settings), identify priorities for capacity building by a systematic needs assessment survey and validate the project's approach by means of a demonstration project. CAPABILITY's overall objectives are to contribute to the efforts to establish and sustain a worldwide harmonisation process for quality standards for the integration of genetic test/genomic knowledge applications into practice and prevention and to serve as a model project for successful, sustainable collaboration between EU research centres and centres from developing countries. The following challenges are common to both EU and middle income countries: The need to develop an evidence-based evaluation process for genetic tests or other applications of genomic knowledge in transition from research into practice. The need for capacity building to enable health care systems to integrate adequately genetic/genomic applications with proven clinical utility into practice and prevention. The need to establish an evidence-based implementation process for genetic/genomic knowledge from research into routine practice, including the review of testing practices, to ensure quality standards of services CAPABILITY is a first step to address these challenges. Copyright CAPABILITY Project 2007 Legal Notice - EC Contract no.: FP6-037275